Description
The Understanding a Turner Syndrome Diagnosis bi-fold is intended to be given immediately after expectant parents receive a confirmed prenatal diagnosis or results indicating high chances for Turner syndrome. This resource offers a brief summary of medically-reviewed information about Turner syndrome that points expectant parents to a website with the full spectrum of information. The corresponding web app (understandingturnersyndrome.org) includes potential medical complications; resources about Turner syndrome; development; available health and social services; family outcomes; and authentic photography.
